The Complexities of Ascertaining Public Preferences for Newborn Screening Policies

In this volume of The Journal, Tarini et al describe an online national survey of the public (n = 502) to evaluate preferences for attributes of candidate newborn screening (NBS) conditions.1 Using best–worst scaling, a preference measurement method from marketing economics,2 they found that, whether recommending or opposing screening, respondents indicated the cost of screening as the most important attribute. Respondents who recommended screening also considered important the number of babies diagnosed and judged as less important the age when symptoms start, success of treatment, and whether earlier knowledge of disease affects success of treatment.

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