Spinal Cord Injury - Quality of Life Grief / Loss

Link to instrument: CATs and short forms available at http://ift.tt/1hR3vma (request access through SCI-QOL@udel.edu). Item bank and short form PDFs available through SCI-QOL@udel.edu.

Acronym:

SCI-QOL Grief / Loss

Purpose:

The SCI-QOL Grief / Loss instrument assesses the emotional reactions of grief and feelings of loss in response to sustaining a spinal cord injury (SCI).

Description:

The SCI-QOL Grief / Loss instrument is an item response theory (IRT)-calibrated item bank with 17 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or 9 item short form (SF).

Area of Assessment: Mental Health, Negative Affect, Quality of Life, Stress and Coping

Body Part: Not Applicable

ICF Domain: Body Function

Domain: Emotion

Assessment Type: Patient Reported Outcomes

Length of Test: 05 Minutes or Less

Time to Administer:

<5 Minutes

Number of Items: There are 17 items in the entire item bank. The short form has 9 items. The CAT can present 4-12 items, depending on the user's time vs. accuracy preferences.

Equipment Required:

The Short Form (SF) version requires only the printed form and a pencil. A CAT administration requires a desktop, laptop, or tablet computer with internet connection and login to AssessmentCenter.net.

 

Access to the short form, and administration of CATs through Assessment Center, is available through SCI-QOL@udel.edu.  

Training Required:

SCI-QOL Grief/Loss article (Kalpakjiam et al., 2015) and, if administering CATs, Assessment Center User Manual.

Type of training required: Reading an Article/Manual

Cost: Free

Actual Cost:

Free

Age Range: Adult: 18-64 years, Elderly adult: 65+

Administration Mode: Computer

Diagnosis: Spinal Cord Injury

Populations Tested:

Spinal Cord Injury

Standard Error of Measurement (SEM):

Depends upon mode of administration:

• Full Item Bank: Mean SEM= 2.18 (Range= 0.16-0.48)
• 9-Item Short Form: Mean SEM= 0.27 (Range= 0.20 - 0.51)
• 9-Item Fixed CAT: Mean SEM= 0.25 (Range= 0.19-0.49)
• Variable-length CAT (Min 8): Mean SEM= 0.56 (Range= 0.20 - 0.49)
• Variable Length CAT (Min 4): Mean SEM= 0.30 (0.26-0.49) 

Minimal Detectable Change (MDC):

Calculated Using Mean SEM at 95% Confidence Interval:

• Full Item Bank: MDC= 6.04
• 9-Item Fixed CAT: MDC= 0.69
• Variable Length CAT (Min 4): MDC= 0.83

Minimally Clinically Important Difference (MCID):

Not Established

Cut-Off Scores:

Not Established

Normative Data:

(n= 716; Mean Age= 43, SD= 15.3; Time Post Injury= 7.1, SD= 10; 45% Paraplegia, 55% Tetraplegia)

Test-retest Reliability:

Traumatic SCI(Kalpakjian et al., 2015)

• Excellent: (Pearson's r= 0.84)
• Excellent: (ICC= 0.83)

Interrater/Intrarater Reliability:

Not Applicable

Internal Consistency:

Traumatic SCI(Kalpakjian et al., 2015)

• Full Item Bank - Excellent: (Cronbach's alpha= 0.95)

Criterion Validity (Predictive/Concurrent):

Not Established

Construct Validity (Convergent/Discriminant):

Not Established

Content Validity:

Items were derived from focus groups and interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI care (n=42) (Tulsky et al., 2011).

Face Validity:

Not statistically assessed, but all content was generated in collaboration with patients with SCI and expert clinicians, so face validity is believed to be strong.

Floor/Ceiling Effects:

Traumatic SCI(Kalpakjian et al., 2015)

 

Full Item Bank:

• Floor Effect: Adequate to Excellent (4.8%)
• Ceiling Effect: Excellent (0.3%)

9-Item Short Form:

• Floor Effect: Adequate to Excellent (6.2%)
• Ceiling Effect: Adequate to Excellent (1.4%)

9-Item Fixed Length CAT:

• Floor Effect: Adequate to Excellent (5.4)
• Ceiling Effect: Excellent (0.3%)

Variable-length CAT (Min 8):

• Floor Effect: Adequate to Excellent (4.9%)
• Ceiling Effect: Excellent (0.3%)

Variable-length CAT (Min 4):

• Floor Effect: Adequate to Excellent (4.9%)
• Ceiling Effect: Excellent (0.3%)

Responsiveness:

Not Established

Considerations:

None

Bibliography:

Kalpakjian, C.Z., Tulsky, D.S., Kisala, P.A., & Bombardier, C.H. (2015). Measuring grief and loss after spinal cord injury. Development, validation, and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form. Journal of Spinal Cord Medicine, 38(3), 347-355.

 

Tulsky, D.S., Kisala, P.A., Victorson, D. Tate, D., Heinemann, A.W., Amtmann, D., & Cella, D. (2011). Developing a contemporary patient-reported outcomes measure for spinal cord injury. Archives of Physical Medicine and Rehabilitation, 92(10), S44-S51.

Year published: 2015

Instrument in PDF Format: Yes

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